Coping with Immunodeficiency can be difficult. IDEA strives to connect patients and their families to valuable resources to improve their lives.
The Jeffrey Modell Foundation and Immune Deficiency Foundation (IDF) are two excellent resources for those interesting in learning more about Primary Immunodeficiency (PI.) Find some of our favorite resources below.
Resources
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Diagnosis
There are various ways to be diagnosed with primary immunodeficiency (PI). You can learn more about these paths to a diagnosis from the IDF (Immune Deficiency Foundation) by clicking here.
Interested in learning the 10 Warning Signs of PI, by the Jeffrey Modell Foundation? Learn more here.
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Treatment
Luckily, a number of treatment options are available to allow those with PI to lead healthy lives. Learn more about those treatment options here.
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Studies
There are several active studies for those with PI. Please click the links below to learn more.
Subcutaneous Immunoglobulin once a month for children and adults with PI
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Support Groups
The IDF hosts a number of support groups, both in-person and virtually, for the PI community. Learn more here.
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Lifestyle Changes
After a PI diagnosis, a number of lifestyle changes may be encouraged. Learn more about living with PI, at any age, here.
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Medications
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